PROMIS® (Patient-Reported Outcomes Measurement Information System) is a set of person-centered measures that evaluates and monitors physical, mental, and social health in adults and children. It can be used with the general population and with individuals living with chronic conditions. It relies on modern psychometric measurement theory allowing more flexibly in administration than most other PROs. Initially supported by the US National Institutes of Health, it represents the largest, most psychometrically advanced PRO system and has had significant uptake in the US and abroad. The PROMIS-Preference (PROPr) scoring system provides a utility score for PROMIS measurements, meaning that PROMIS data can be used to perform economic analyses such as cost-utility analyses. The course aims to introduce participants to PROMIS and PROPr, including how PROMIS’s psychometric foundation distinguishes it from other PROs and thus distinguishes PROPr from other health-utility measures.
The course will present participants with an overview of the PROMIS project, including its development and how it differs from other PROs; it will also describe the development of PROPr. The class will present an example of a PROMIS and PROPr-related analysis. The course will be useful to those interested in PROs, cost-utility and comparative-effectiveness analyses, and health utility. The focus of the course will be on understanding the potential of PROMIS and PROPr for research, clinical, and policy settings. The course does not assume participants have any background in measurement theory.
The specific objectives (learning goals) are: